My day was made today!
#1
My day was made today!
Some of you may already know my affliation with childhood cancer. Perhpas you have read some old posts or just have seen some of my comments here and there. Well, I thought it was time for a shameless plug, because my day was really made today and I would like to share the experience.
After loosing our middle daughter in Jan 2001 to cancer (Libby - 17 months), my wife and I incoprated a non-profit organization called Home of Their Own to honor Libby's memory and help other families in need.
Since then, we have been busy raising money (over $250K) and a few years ago the organization purchased a home in Hershey, Pa. across from the children's hospital. We renovated it...it is beautiful. The home is used by a family who has a child with cancer. They can stay as long as needed and do so at ZERO expense. The house is primarily for children who have undergone a bone marrow transplant and need to live in isolation. To date, we have had over a dozen families stay.
The house is a kid's paradise with all the toys and movies they need.
Over 50% of "our kids" who stay will never recover....that is just a simple fact. For may of them, staying in this house is the last good memories that they will have. Without us, their only alternative in remaining in a dinky hospital room for many more months.
Earlier today a new family moved in. The patient is a little four year-old girl and she has two other young siblings. She had been hospitalized for 44 days straight and has never been allowed to leave the hospital room. Now, she can roam free around an entire house and play with her sibs and live like a normal kid (well almost) until she is well enough to go home.
Holding back tears, her Mom could barely contain herself when I spoke to her on the phone. The gift was more than she could have imagined. She had no idea until they walked in the door what to expect.
Sometimes effort is paid-off...this is one of those times.
After loosing our middle daughter in Jan 2001 to cancer (Libby - 17 months), my wife and I incoprated a non-profit organization called Home of Their Own to honor Libby's memory and help other families in need.
Since then, we have been busy raising money (over $250K) and a few years ago the organization purchased a home in Hershey, Pa. across from the children's hospital. We renovated it...it is beautiful. The home is used by a family who has a child with cancer. They can stay as long as needed and do so at ZERO expense. The house is primarily for children who have undergone a bone marrow transplant and need to live in isolation. To date, we have had over a dozen families stay.
The house is a kid's paradise with all the toys and movies they need.
Over 50% of "our kids" who stay will never recover....that is just a simple fact. For may of them, staying in this house is the last good memories that they will have. Without us, their only alternative in remaining in a dinky hospital room for many more months.
Earlier today a new family moved in. The patient is a little four year-old girl and she has two other young siblings. She had been hospitalized for 44 days straight and has never been allowed to leave the hospital room. Now, she can roam free around an entire house and play with her sibs and live like a normal kid (well almost) until she is well enough to go home.
Holding back tears, her Mom could barely contain herself when I spoke to her on the phone. The gift was more than she could have imagined. She had no idea until they walked in the door what to expect.
Sometimes effort is paid-off...this is one of those times.
#6
I have seen you sig about stopping childhood cancer but never knew it was so personal to you.. I am sorry about your loss. I have 3 children 2 girls and a boy, my girls are 10 and 5 and my baby boy is 3. We are right now dealing with ssome issues with my boy. He is undergoing testing for Lympnomic Cancer. We don't know really anything other than his lympnodes are swollen and his spleen is inlarged. I just recently been learning about cancer in children, it is blessing to know someone that has gone through all that comes with thier child having cancer and losing them to it and seeing that life still will go on no matter how you think it won't without them. GOD Bless you and your family and GOD Bless you for what you bring to the familys that are just starting to travel the road you have... Kathy
#7
wow...
what you are doing is a wonderful thing for those unfortnate children. It's nice to finnaly see a bit more good in the world, especially towards children. If there's anyway we here can help, i'm sure we will...I didnt know ur fight against childhood cancer was so personal, i am sorry for your loss, but i am glad that you managed to turn things around and give other children a brighter future...
#8
Im really sorry to hear about your daughter, my second son is do to be born in about 2 weeks and i can imagine anything ever happening to my kids. The house is a great idea and im glad to see someone doing things for these kids. I was involved in a bad motorcycle accident that put me in a hospital for 6 months and if it werent for my now wife and family i would have lost it, so that is a great thing you are doing for the kids and familys.
#10
Wow.... Sorry for you're loss... It's people like you and the orginization you're affiliated with, that make the world a much better place to live in... Keep up the awsome work.
I recently lost a best friend of 10 years to a rare cancer (parents wouldn't say). All I can remeber is seeing him on his last few days, in the hospital laying in a bed. I'll never forget his face. Especially when 2 seconds before he pasted away, he said thanks for being such a great friend to me, and he shed 1 very small tear. I told him you'd have done the same for me.
Every year on his birthday, I bring flowers and put them by his grave, Adam Williams, 1984 - 2005.. Rest in Peace my Good Friend :sad7:
I recently lost a best friend of 10 years to a rare cancer (parents wouldn't say). All I can remeber is seeing him on his last few days, in the hospital laying in a bed. I'll never forget his face. Especially when 2 seconds before he pasted away, he said thanks for being such a great friend to me, and he shed 1 very small tear. I told him you'd have done the same for me.
Every year on his birthday, I bring flowers and put them by his grave, Adam Williams, 1984 - 2005.. Rest in Peace my Good Friend :sad7:
#14
I'm 12 years cancer free. But I can't imagine how I would feel or react to my kid having it. I think that would be worse than my chemo treatments. I would easily go through it again to keep any of my loved ones from going through it just once. I can almost imagine how you feel about childhood cancer. You must feel hopeless at times after losing your child. I know I would be devastated:angry7:
#15
Thats awesome I have 2 kids of my own. My son who is 10 had to have heart surgery when he was 1 to fix a hole in his heart. We almost lost him so I can feel a little of your pain. My condolenscences to you and your family. Keep up the good work
#16
I do thank you for what your doing. My grandfather currently has Mesothelioma (Rare type of lung cancer due to Asbestos), has been undergoing chemo, but unfortunately the cancer isnt going away. I've only got about 2-3 more months with him before he passes away.
Honestly, I dunno what im gonna do after he passes away. This is the first grandparent to pass away for me. Hes an awesome guy, great mechanic, and I know im gonna miss him.
Either way, thanks for what your doing for families of children with cancer. Its true, the world could use more people like you.
Honestly, I dunno what im gonna do after he passes away. This is the first grandparent to pass away for me. Hes an awesome guy, great mechanic, and I know im gonna miss him.
Either way, thanks for what your doing for families of children with cancer. Its true, the world could use more people like you.
#18
Awesome man, Im sorry to hear about your daughter!! I have a 10 year old and I just can't imagine something like that. Hey Im to far from you (York) we go up to Hershey to see the Bears and of course H. Park. Are you going to be at CJ's In July? Anyway very very cool thing your wife and your are doing!!
#20
I dont know how much this would cost But I work for Infocision a tellemarketing company That specializes in political and nonprofit fundraising we are more expensive than the competitors but we get results You can check out the company at www.infocision.com
#21
Originally Posted by liv4him
Awesome man, Im sorry to hear about your daughter!! I have a 10 year old and I just can't imagine something like that. Hey Im to far from you (York) we go up to Hershey to see the Bears and of course H. Park. Are you going to be at CJ's In July? Anyway very very cool thing your wife and your are doing!!
I am a bit bothered by this. I am going to try to call this week and see where that gets me. Perhaps the owner is just not getting my emails for some reason.
#22
Originally Posted by stealth stang 90
I dont know how much this would cost But I work for Infocision a tellemarketing company That specializes in political and nonprofit fundraising we are more expensive than the competitors but we get results You can check out the company at www.infocision.com
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10-26-2008 09:29 PM